Fellow: Craig Newman
Over 600,000 people in the UK live with epilepsy; people with epilepsy have a 24 times higher risk of sudden death than the general population, although 42% of these deaths are considered potentially avoidable. Craig’s innovation is the Epilepsy Self Monitor (EpSMon), a free epilepsy risk management tool, developed with partners Cornwall Partnership NHS Foundation Trust, Royal Cornwall Hospital NHS Trust and Oxfordshire-based charity SUDEP Action. EpSMon can be used as a prevention tool by providing risk assessments to patients and encouraging early intervention for people with rising risk. It enables patients to monitor their own seizures and well-being between medical appointments and shows patients whether risk factors have improved or worsened to help ensure they seek medical help sooner if required. EpSMon is a digital version of a SUDEP (Sudden Unexpected Death in Epilepsy) and Seizure Safety Checklist developed and available for professionals who register with SUDEP Action for annual updates from a UK-wide development group of experts.