RIX Wiki

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RIX Wiki

5th March 2020

Software that enables people with learning disabilities to share personal health and care information for effective person-centred support in their communities

The RIX Wiki is an accessible multimedia communication, planning and information-sharing tool developed with and for people with learning disabilities alongside their carers, families and professionals. Users create personal portfolios using pictures, video clips and sound to capture the best ways to understand and support them, enabling genuinely personalised care for their health and wellbeing.

“The Wiki can save a lot of time and is really key for information sharing and consistency. It means a person or their family carer won’t have to keep repeating themselves.”

Learning Disability Nurse, Camden

“[RIX] Wiki has become a complete lifeline. It eases the ever-heavy challenge of coordinating all professionals and communicating real-life detail for a non-verbal child.”

Parent, Herefordshire

The challenge

People with learning disabilities experience avoidable suffering and significantly higher mortality due to poor understanding of their communication and inadequate care-coordination between agencies. Carers of people with high support needs commonly report that professionals do not listen to them, and they are forced to constantly repeat themselves to different service providers.

Best practice models of support and personal-care are shared between multi-disciplinary professionals via self-made instructional media, reducing patient discomfort, nursing needs and hospital admissions.

The solution

RIX Wikis capture the personal needs and wishes of individuals alongside information from their families and carers to improve understanding of their needs. ‘About Me’ information integrates with personal care records for secure sharing with professionals, providing a trusted data source to inform and transform health and care for learning disabled people.

Impact

Better communication and information-sharing between providers and users of services
Improved care and saving costs with a person-centred system that matches services to individual need for effective personalisation
Less adversarial relationships lead to streamlined assessment and delivery of care packages, with reduced recourse to difficult meetings and costly tribunals

Fellow: Andy Minnion MBE