Software that enables people with learning disabilities to share personal health and care information for effective person-centred support in their communities
Software that enables people with learning disabilities to share personal health and care information for effective person-centred support in their communities
The RIX Wiki is an accessible multimedia communication, planning and information-sharing tool developed with and for people with learning disabilities alongside their carers, families and professionals. Users create personal portfolios using pictures, video clips and sound to capture the best ways to understand and support them, enabling genuinely personalised care for their health and wellbeing.
“The Wiki can save a lot of time and is really key for information sharing and consistency. It means a person or their family carer won’t have to keep repeating themselves.”
Learning Disability Nurse, Camden
“[RIX] Wiki has become a complete lifeline. It eases the ever-heavy challenge of coordinating all professionals and communicating real-life detail for a non-verbal child.”
Parent, Herefordshire
The challenge
People with learning disabilities experience avoidable suffering and significantly higher mortality due to poor understanding of their communication and inadequate care-coordination between agencies. Carers of people with high support needs commonly report that professionals do not listen to them, and they are forced to constantly repeat themselves to different service providers.
Best practice models of support and personal-care are shared between multi-disciplinary professionals via self-made instructional media, reducing patient discomfort, nursing needs and hospital admissions.
The solution
RIX Wikis capture the personal needs and wishes of individuals alongside information from their families and carers to improve understanding of their needs. ‘About Me’ information integrates with personal care records for secure sharing with professionals, providing a trusted data source to inform and transform health and care for learning disabled people.
Impact
Fellow: Andy Minnion MBE
early diagnosis and prevention
workforce support and process improvement
early diagnosis and prevention
integrated community-based care
integrated community-based care
hospital-based care